WHAT'S NEW WITH LOVE 4 LEW.

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OUR BEST DAY YET!

OUR BEST DAY YET!

    So this is where I get all Patch Adams on you.... We checked back into the Plaza (Alberta Childrens Hospital) on Thursday Sept 29. In style of course (via ambulance as Lewiston was puking, choking and turning blue) We got in and he seemed settled so of...

ITS BEEN A MONTH

ITS BEEN A MONTH

  It has been a month.... (Before you get all judgy - i am tired, i don't like editing and so yes there are several mistakes in here - get over it....the world has bigger problems than which "there" I used.) This last month has been a whirlwind. When we walked...

THIS IS CRAZY…… JUST CRAZY!!!

THIS IS CRAZY…… JUST CRAZY!!!

Okay so a little background as to why this is totally CRAZY and how I know so much about SMA Spinal Muscular Atrophy. Chances are you have never heard about it. I moved to Calgary 10 years ago on October 17, 2006. I was young and dumb with only $300 in my bank...

LEWISTON JAMES

LEWISTON JAMES

Our fears were recently confirmed during our meeting with the Pediatric Neurologist at AB Children's Hospital. In Winnipeg, we feared this diagnosis but were led to believe it wasn't even a possibility. Today the scary diagnosis of SMA - Spinal Muscular Atrophy Type 1...